(P02-028-25) Latino Patients’ Perspectives on Kidney Disease Research Priorities

Objectives: Kidney disease affects over 37M Americans, with Latinos disproportionately impacted by worse outcomes compared to Whites. Partnered with Florida’s largest free healthcare clinic, we examined Latino patients and families’ perspectives on chronic kidney disease (CKD) priorities. Through patient-centered Comparative Effectiveness Research (CER), we hope to enhance culturally relevant care, support patients in making informed healthcare decisions, promote patient engagement, and contribute to more equitable kidney care outcomes for Latinos.

Methods: This study employed qualitative methods. We conducted in-depth interviews with 15 Latino patients at different stages of CKD and nutritional challenges and their families. We relied on thematic analysis, guided by the Health Belief Model decision-making constructs of susceptibility, severity, benefits, and action cues.

Results: Participants reported that perceived susceptibility to CKD and its complications contributed to delayed care-seeking behaviors. Patients often waited until symptoms worsened before seeking care. Mobility limitation, tiredness, pain, and fatigue, which made activities of daily life increasingly difficult, along with emotional burdens and financial strain, amplified the perceived severity of their condition. Culturally relevant education on CKD, diet, and treatment options, combined with enhanced patient-centered communication and active family involvement, were suggested to improve engagement in care. Limited resources, low English proficiency, and cultural disconnects were barriers to adherence to medical nutrition therapies and achieving therapeutic goals. Patients and their families stressed the need for tailored interventions and more frequent follow-ups to enhance patient self-efficacy and improve care outcomes.

Conclusions: This study underscores the importance of addressing the most pressing needs of underserved Latino communities in kidney research. Integrating Latino CKD patients’ perspectives into patient-centered CER efforts will enhance culturally relevant and patient-centered care, promote patient engagement, and improve outcomes that matter most to patients, ultimately achieving more equitable kidney care.

Funding Sources: Patient-Centered Outcomes Research Institute